General Meeting
Tuesday 18th May 2010
3.30pm
The Nerve Centre
54 Railway Road
Blackburn VIC

Come and meet the new committee!
General business matters of the Porphyria Association will be discussed.
Tea and coffee provided
Enquiries: phone: (03) 9845 2737 or email: Porphyria@mssociety.com.au
If you are unable to attend the meeting in person, you can still have your say by post, phone or email

Victoria: Medical Cooling Concession

This is a Victorian Government concession to make electricity bills more affordable for low income Victorians who have multiple sclerosis and other medical conditions with heat intolerance; which may include Porphyria.

You can download the flyer here, or phone the Concessions Information Line on 1800 658 521.

General Meeting : Wednesday 5 November 2008 - 1:30pm

Investing a New Committee

People want the Porphyria Association Inc to continue and, due to some solid campaigning by our administration officer, we have a strong committee to come on board!

You can download details of the meeting in as a Word Document (in a zip file) or as an Acrobat Reader PDF file.

Annual General Meeting: Tuesday 30th Sept 2008 @ 1.30pm

Including vital discussions about the future of the Porphyria Association.

Full details: HTML (view online) | Word document (needs to be unzipped) | PDF format

Meeting to be held at
The Nerve Centre
54 Railway Road Blackburn, Vic
Tea, coffee provided
Enquiries: (03) 9845 2737, (m): 0408 337 173

Website Updates

Extra links added in the Contacts and Links sections for more support groups in Australia and internationally.

Porphyria Association General Meeting Tuesday, 22 April 2008 1:30pm

Education Topic: Writing Workshop ‘Telling Our Stories’ We have been told the best way to improve knowledge of Porphyria is to tell our stories. We will run a short workshop of techniques to get you started on writing your story for beginner writers to experienced writers. Anyone who wants to send us a story, please do. All stories are welcomed - single events or long sagas. (NB Only tell what you are comfortable with.)

Meeting to be held at
The Nerve Centre
54 Railway Road Blackburn, Vic
Tea, coffee provided
Enquiries: (03) 9845 2737, (m): 0408 337 173

Read more here or download the flyer.

Genetic Support Awareness Week
Sunday 1st to Saturday 6th July 2007

Genetic Support Awareness Week raises awareness of genetic conditions and what it means to be affected by a genetic condition. It’s also an opportunity to meet others “in the same boat”, celebrate the joys and work together to overcome the challenges.

More info at the GSNV (Genetic Support Network of Victoria) website.

AMaPo: FIRST INTERNATIONAL PORPHYRIA PATIENTS' MEETING!

26th & 27th October in Rome, Italy.

More information at: www.amapo.it/rome2006/

Quarterly General Meeting on
Saturday, 25th March 2006

Click here for more info.