1:30pm
Education Topic:
Writing Workshop
‘Telling Our Stories’
We have been told the best way to improve knowledge of Porphyria is to tell our stories.
We will run a short workshop of techniques to get you started on writing your story for beginner writers to experienced writers.
Anyone who wants to send us a story, please do. All stories are welcomed - single events or long sagas. (NB Only tell what you are comfortable with.)
Meeting to be held at
at
The Nerve Centre
54 Railway Road
Blackburn, Vic
Tea, coffee provided
Enquiries:
Nerve Centre: (03) 9845 2737, (m): 0408 337 173
e-mail: porphyria@mssociety.com.au
Interstate & country members can have their say by post, phone or e-mail
Check out our website: www.porphyria-australia.org
MINI BULLETIN:
Please fill out the enclosed questionnaire from Dr Stig Thunnell to identify drugs which can and can’t be used in cancer treatment for people with Porphyria.. The Questionnaire can be sent direct to the Swedish Porphyria Foundation or sent to us at the Porphyria Association and we will forward the completed questionnaires on for you. .
AGENDA General Meeting April 2008
Apologies
Minutes of last meeting
Matters arising from Minutes
Correspondence
Treasurers report.
Office report
Introducing Lisa Thomas, our new funding officer and administrations support. .
Strategic planning
Applying for funding for a publication ‘Telling Our Stories’.
Dr Stig Thunnell, Swedish research on drugs for cancer and porphyria.
We have a few copies of the Swedish Porphyria Association booklet “Patient and Doctor’s Guide to medication in Acute Porphyria 2005” for sale or it can be ordered direct from porfyri@swipnet.se OR porphyricentrum@karolinska.se
Any other business
Date of next meeting
To comply with the rules of the Porphyria Association Incorporated, members need to have completed a membership form and paid $5 in order to be eligible to vote at meetings. Voting can be done by proxy. For enquiries please call The Porphyria Association Inc on (03) 9845 2737 or 0408 337 173